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Palliative Care

Information about palliative care
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The Butterfly Project

An initiative that has gained significant attention and credit has been the “Butterfly Project” which arose out of a piece of research looking at twin and multiple losses at the RVI. This has seen neonatal units from around the world adopt the idea and a dedicated website has a wealth of resources for professionals and those involved with the care of the babies and families who experience such tragic losses. To find out more, visit the The Butterfly Project website.

Downloads

File 1 - Care Bundle Foreword (307.9KB)
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File 2 - Care Bundle Flow Chart (213.1KB)
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File 3 - Care Bundle Overview (274.3KB)
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File 4 - Antenatal Congenital Abnormality MDT Form (162KB)
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File 5 - Care Bundle Checklist 1 (Acutely unwell baby, at risk of dying/in process of dying) (481.5KB)
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File 6 - Care Bundle Checklist 2 (Transfer Checklist - baby with life-limiting illness, not necessarily dying/baby for transfer to different setting; a more local hospital, paediatric ward, home, community, children's hospice) (526.2KB)
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File 7 - Neonatal Comfort Care Plan (NCCP) (300.2KB)
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File 8 - After Death Checklist (296.6KB)
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File 9 - NCCP Extras (Death certification, donor guidelines, useful contact numbers) (169.8KB)
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File 10 - Neonatal Death Referral Form for Coroners (41.2KB)
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File 11 - Supplemental Information & Resources (281.4KB)
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File 12 - Regional DNA CPR Guidance (282.2KB)
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File 13 - Emergency Health Care Plan (EHCP) Form (591.2KB)
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File 14 - Neonatal Stratified Treatment Escalation Plan (nSTEP) Form (309.1KB)
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File 15 - A Guide to End of Life Care (Together For Short Lives publication) (2.5MB)
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File 16 - RCPCH Framework for Practice (689.8KB)
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File 17 - Decisions Relating to CPR (BMA/Resuscitation Council/RCN Publication) (601.8KB)
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File 18 - N East Palliative Care Helpline (199.9KB)
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File 19 - Useful Resources and Contacts (441KB)
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File 20 - Guidelines for Health Professionals for Bereavement from a Twin/Multiple Pregnancy (964.3KB)
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The Northern Neonatal Network gives specialist and intensive neonatal care to babies born in the North East and Cumbria.