Northern Neonatal Network Website   

Parent's Information

Welcome to the parents and families section of the Northern Neonatal Network website. The information in this section is meant to help provide information and sources of additional information to support you and your family through a difficult time.
Babies sometimes need to be transferred between our 11 Units across the Network area and when that happens, parents, families and friends may be visiting other hospitals for the first time and will be very unfamiliar with the facilities available there. To help inform them at such times, we have got some standard information that visitors will find invaluable, listing things like full addresses, visiting details, information about the Baby Unit, parking facilities. You can easily download these and print them out and keep as a reference and source of information. Details can change from time to time and we attempt to keep these as up to date as possible, but do check with the staff at each hospital and let them know if there seem to be any changes we need to know about so they can inform us. Details for all our Units are below;

Newcastle RVI

James Cook

North Tees

Sunderland

Cramlington

Durham

Darlington

Gateshead

South Tyneside

Carlisle

Whitehaven

BLISS Support for families

BLISS is the national charity devoted to providing information and support to the parents and families of babies who are sick and premature. They have a comprehensive range of information available free of charge, some via downloads at their website which you can find here

 

BLISS have also released a set of five short videos introducing people to neonatal units and explaining the sort of things you may come across during your baby's stay. These can be found here

 

Other external support and resources for families

As well as the help and support available from BLISS (listed above) and some of the charities listed below, there are a number of locally-based charities and sources of support available to parents of babies cared for on our Baby Units. These vary from financial support (usually available when they are in receipt of certain qualifying state benefits) through to practical support by way of respite care and direct assistance. They can be contacted directly by clicking on the links given on their names; 


Safe Families for Children is a Registered Charity offering crisis support to families in the form of practical help and assistance by way of respite care for siblings whilst parents are facing difficulties, which may include admission of sick and premature babies creating problems for them. 

The Rainbow Trust provide emotional and practical support for families who have a seriously ill child. They offer the whole family support 24/7 regardless of diagnosis and for as long as it is needed. Their stated vision is for all families who have a child with a life threatening or terminal illness to have access to a Rainbow Trust carer at this time of great need.

Family Nurse Partnership is voluntary home visiting programme for first time young mums, aged 19 or under (and dads). A specially trained family nurse visits the young mum regularly, from early in pregnancy until the child is two. The aims are to aims to enable young mums to:

  • Have a healthy pregnancy
  • Improve their child’s health and development
  • Plan their own futures and achieve their aspirations

Network App

The Network has made a Smartphone App for parents that is freely downloadable from both the Apple iTunes and Android/Googeplay stores. It gives detailed and helpful information on the Network and each of our 11 Units as well as general information about breastfeeding, your baby's development and other aspects of care. It is an excellent resource for parents and carers. Search for "NNN" on both stores.

Network Patient Survey & questionnaire

The Network has recently drafted a survey questionnaire to allow each Unit to get feedback from parents and families about their baby's care and the facilities they can access. The intention is to use this for bringing about on-going improvements by providing the Network and each Unit with data and comments that can be fed back and allow them to be considered and actioned accordingly. The latest version of this questionnaire can be found here 

 

 

Common Terms

Some of the terminology and "jargon" used within neonatal care can be very confusing for parents and families of babies cared for on our Units. In order to try and make the explanations a little easier, we have prepared a glossary of the most common words you may come across relating to equipment and conditions etc. You can find this by clicking here

 

Links

Below you will find the websites of some of the various charities and support groups that exist for parents and families of babies that have specific conditions, or that provide general help for parents. Most of these are national organisations but may have local groups providing support, counselling etc. Please get in touch with them via their contact details and they will be able to help you or signpost you to other people and groups/organisations where appropriate.


BLISS (National Charity for babies born too soon, too small, too sick)

Cleft Lip & Palate Association

Contact A Family

Cystic Fibrosis Trust

Downs Syndrome Association

La Leche League

National Childbirth Trust (NCT)

SANDS (Stillbirth And Neonatal Death Society)

Twin And Multiple Birth Association (TAMBA)


Further information on related topics, such as relevant national organisations and websites of our local NHS hospital Trusts where neonatal care is provided can be found by clicking here.

Safe Families for Children is a Registered Charity offering crisis support to families in the form of practical help and assistance by way of respite care for siblings whilst parents are facing difficulties, which may include admission of sick and premature babies creating problems for them. 

Northern Neonatal Network 2015

@NorNetUK

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